We're HOME!!

Yeah! We finally got discharged from the hospital this afternoon and arrived home about an hour ago. Burke is doing well, and trying to get some sleep upstairs right now. When we got home he was playing and just enjoying being in his own territory.

The swallow study went well today. He is still aspirating thin liquids though and cannot have anything by mouth that is thinner than honey consistency. We are learning though that his tongue probably has a lot to do with why he can't swallow some foods. He has had his tongue clipped twice, once when he was about 6 weeks old and then the second time just last August and he even had to be put under for the second procedure because it would be too traumatic for him otherwise. So, in August we thought we conquered his tight frenulum, but oh no, it has fought back. Since he sucks his fingers all the time he forces his tongue to stay down which is bad for chewing and swallowing. His tongue needs therapy (that sounds funny) and we will be going to a speech therapist regularly to help with his tongue needs.

His lungs sound good now after a couple of days on the antibiotics and the cardiologist actually stopped that med, so we will see how he does. He is on reflux meds to help with the food coming up from his stomach, but that won't totally help him from aspirating the food in his stomach. So, we will see if we land in the hospital again sometime soon for aspirating because sometimes you can't even tell if the foods he has been approved to eat will go into his lungs or not. Great. We are pretty much perturbed right now and it is probably due to the fact that Burke is way fussy right now while we are trying to get him to go to sleep. Hopefully he will have a good night sleep and be in a better mood tomorrow. We are doing well just a little tired. Until next time, when there will be yet another thing that will come up on top of everything else going on. I don't mean to leave on a bad note, I guess that is the way it is when I am tired. So long.