I got some exciting news yesterday from Linda, the scheduler in the Cardiothoracic Surgery department at Primary Children's Medical Center! She has been working on getting Burke scheduled for heart surgery in the month of November. I think the doctors finally are thinking that Burke might really need this surgery. He was going to be scheduled for December 2, but I told Linda that he could not last that long and that he would for sure get sick before then. She said she would talk with Dr. Kouretas (Burke's surgeon) and figure out an earlier date. It took them awhile to rearrange everyone's schedule. They said it would take some effort on their part to get everything situated, because they were trying to work in two busy heart surgeon's schedules and all the doctors that need to be there that day as well. They also must have moved someone else's surgery date to another day to accommodate Burke. I feel bad for that person, and for his mother. I am so sorry that they have to go through more time just waiting to get in for heart surgery. I would go insane in they changed Burke's surgery date. That is my selfish side shinning through, then I would feel so bad for that baby, and would want that to happen if it was the Lord's plan. I am truly praying so hard that this is the time for Burke to get his heart surgery. We are hoping and praying that he won't get sick in the next week.
We are scheduled for Friday, November 7th for and MRI and Echo, Monday the 10th will be a clinical exam and Pre-op work and labs, and on TUESDAY, NOVEMBER 11, 2008- HEART SURGERY!!! (can you tell I am anxious for this to actually happen?) There is a chance still that they will not do surgery on that day. If they found something in the MRI or other testing to make them not comfortable with doing surgery now, they would postpone us or refer us somewhere else.
So, we have a week and two days until we leave for testing. I am hoping and praying that he can actually go that long without getting sick. Because he cannot be sick for testing and or surgery. They will have to put him under for the MRI and echo and they cannot do that if he has a cold or something else. I will know that things will happen according to the Lord's plan, but I am hoping with all my heart that it His plan has Burke getting his surgery when it is scheduled this time in November. We have been waiting a long time for this and hope and pray that this will work out. Will you all pray for Burke? That he will not get sick and his body will be strong and healthy for testing and surgery. Thank you for all those who are praying for Burke already, that means so much to me. They have helped so much, and for all those who have helped me with Burke in the past. Thank you. Thank you. Thank you.
Wednesday, October 29, 2008
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5 comments:
Hooray! That's really soon. We'll keep praying.
That is GREAT news! lock yourselves in your house, and screen everyone for bad germs as they walk up to your door! We must keep this kid healthy!
We will definitely pray for him!
I left a comment back in May under your "Our latest trip to Primary Children's" post, I am not sure if you saw it.
But since you are scheduled for Burke's surgery, I just wanted to reiterate that there is a support group for heart families that are seen at Primary's. If we can do anything for you and your family please let us know. My son's surgery was also performed by Dr. Kouretas. He is amazing, as is Dr. Hawkins.
Also, I would love to bring you a Care Package that we distribute to families there for heart surgery. Please email and let me know if that would be something you would be interested in.
The group's website is:
www.IntermountainHealingHearts.org
Hugs & Prayers from another "heart mom",
Christina Davis
www.jacobsheart.blogspot.com
christina@intermountainhealinghearts.org
Hey Rach!!
That is such exciting news!! I hope everything goes well!! It's so good to see pictures of your cute kids and get updates on your lives!! Take care!
Ty & Rachel - We will definitely pray for your family, for Burke, and for the Dr's. I have thought about you a lot lately, what I can only imagine you've gone through, and the strength you show. I hope that everything goes well.
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