Sunday, June 22, 2008

Primary Children's Here We Come!

Well, we head down to Primary Children's Medical Center tomorrow for testing on Burke's heart. He will have a heart catheter performed on him on Tuesday, June 24th, and possible heart surgery on Thursday, June 26th. The heart catheter testing will be done to check if the left branch of the pulmonary artery has grown since the last testing in April of this year. If that branch has not grown, or if it has grown but not enough, then they will do a procedure right there in the cath lab to balloon open his artery so more blood flow will be passing through that artery. The only problem is that they have to pass through his pulmonary valve which is basically a dead valve to get to the left branch of his artery. The valve is basically dead because it has never worked since his heart was formed. And because of that, it might only be a pin hole in size and they have to get the catheter through that to open it. It is very tricky. But, we are still hopeful that miracles can occur and will occur if we but have enough faith, and if it is in the Lord's plan for Burke. Burke is a miracle himself and we are grateful for his life, his spirit and everything that he has taught us and has brought to our family.

So, after the catheter, Burke will need to stay in the hospital to recover because that procedure is a surgery in and of itself. He might stay over night, we just won't know until we get there. The cardiologists and surgeons will conference both Tuesday and Wednesday and decide what needs to be done on Burke's heart from there on out. If they decide to go ahead with the surgery it will be performed on Thursday. And we also don't know how long recovery will be. We could be there up to four months. We are preparing ourselves for the long term, but it all depends on Burke's heart and body. There is a chance that they might send us home though. If so, we could be home on Wednesday, it all depends on what they find from doing the heart catheter. Needless to say, we are very anxious to get down to Utah to finally decide a course of action for our little Burke.

I just want to thank everyone for all your prayers and faith in behalf of Burke and our family. My family and Tyler's family all fasted and prayed today in a special fast before we go down for surgery. I truly felt support and love and the faith of our family tonight at the fireside held at Tyler's parents house. They usually hold a spiritual fireside the Sunday before their family reunion every year. And this year it was bumped up early, and so we were able to attend before we would need to go for testing for Burke. Anyways, tonight was a great night and I appreciate with all my heart all those who shared their thoughts in behalf of Burke. It was likewise great to hear from the younger kids about their thoughts about Burke, and to all of you, keep sharing your testimonies, that is the way it grows. And thank you for sharing your faith with me, it really boosted me.

I will try and keep everyone posted on what is going on while in Utah. If not, I know my mom
and Jan will know so call them, if you don't hear from me. Love you all and we will see you when we see you. Here are some recent pictures of the kids.





All these pictures are from father's day, we had fun pampering daddy on his day. Emma made a horse cake for daddy with the horses we used on her birthday cake last year. She was so excited to make it. Okay, this post is like two posts combined, sorry for the randomness. Enjoy!









4 comments:

The Drinkwater Family said...

Oh my goodness Rach! My thoughts and prayers are with you, Tyler, and Burke. I hope that all goes well!

Grace said...

Well, good luck this week. Jake and I will be thinking of Burke constantly. I will be up in Utah in the middle of July, so if you are still there I might come and say hi. Love you guys.

Anonymous said...

You're family is so precious...my heart melts every time I see the smiles on Burke's face. Good luck this week and the next few months. Our thoughts and prayers are continually with you and the doctors.

Melissa-Mc said...

I will be praying MIGHTILY these next few weeks for the little guy and for your family. Please keep us posted. You have amazing strength.