I can't believe that it is almost August. August seemed so far away just a few months ago. August to us, means packing up and moving from Utah back to Idaho for a short few days, then going through our storage in Idaho and deciding what to take to Arizona and what to leave in storage for the next 9 months. Then we have to pack the moving truck and FINALLY move our stuff and our little family down to Arizona!! August means a party to celebrate Burke's 2nd birthday and Tyler's hard work in getting into the MRED (Master's in Real Estate Development) program at ASU! August means a party for my sister Liz possibly at Disney Land- Hilary you are invited too- it would be sooo much fun to have you there!! August means hot hot weather-weather that we are not totally prepared for. August means living right next door to Liz (literally right next door and did I mention- PARTY?)!!!
What a fun fall and winter we are going to have and we are so excited and anxious to FINALLY move to the good ol Sun state of ARIZONA!! We will sure miss being so close to all Ty's family and friends in Idaho, and Martha and Jenny and the other family and friends we have recently met down in Utah. Needless to say, we are excited for this new adventure and where it will take us! BRING ON AUGUST!!!
Johnson Family Est. 2004
Rachel. Emma. Burke. Tyler.
Tyler and Me
Tyler and I have been together for over six years and enjoying life. We have two kidlets who rule the coop and we are so grateful for them in our lives. Here's just a chapter in our lives...come enjoy our story.
Fun family shot!
My sister Liz from redbucketphoto.blogspot.com took this and all the other professional pictures on our blog- isn't she awesome!!
My Cowboy
Here's my boy at the Ranch in Idaho.
Emma Mae
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This is Emma Mae who is 4! I can't believe I have a child who is that old! She is as curious and determined and indepentent as they come. She is full of life, of love, and of dang cute laughter! She is such a blessing in our lives!
Emma at age 3
Burke
This is Burke who is 3. He is the happiest little guy and we are amazed with him and what he adapts to daily! He is such a blessing in our lives and we are grateful to have his heart touch ours in so many ways. He was born with congenital heart disease called Double outlet right ventricle (DORV) and has undergone four open heart surgeries and many heart catheters and other surgeries. He received the Rastelli Procedure which was his full repair surgery, in December 2009 by Dr. Hanley at Lucile Packard Children's. He is doing well and is loving life with out oxygen. As a friend said when Burke was born, "He came into this world open-hearted". He truly has.
Seriously? Burke when he was 2.
Burke and The Tank
Burke was born with HD called Double outlet right ventricle. His oxygen levels his whole life have been 75-85% and he was on oxygen from June of 2008 until December of 2009. He was able to get off the oxygen just last December because he had his full repair heart surgery. Dr. Hanley performed the Rastelli Procedure on him at Lucile Packard Children's Hospital and he has changed Burke's life. We no longer have to tote "tank" or "missle" around everywhere we go. We are truly grateful that Burke does not need oxygen any longer to sustain life. He is our little miracle and we thank the Lord above for fixing his heart. I just love this picture of Burke and tank who was his constant buddy for most of his life.
Red Bucket Photography
7 comments:
Yeah! I have been waiting for an update!! Sounds like things are going great and Burke is doing well. How exciting that you are going to get to live NEXT DOOR to Liz!! Could life be any better for you? Can't wait to hear more about Burke!
moving on always feels great, doesn't it! so happy about the burke news! we were with mindy when she got the happy news and we all just cheered! have so much fun living by your sister- truly a party!
Whoa, life just doesn't slow down for you, does it!?! How exciting and fun. That's great that he is going to ASU, and that you are off to start another adventure. I hope that the heat treats you kindly and we'll wait to hear all about your adventures as you get settled!
Yay for AZ! Call me when you get here or if you need any help moving in! Do you already have a place?
Hi there. Believe it or not...I came across your blog from your mother, who cleaned my teeth! Small world, I was discussing my son's most recent surgery and she told me a little about your family and your amazing son. I am happy to read that things are moving along well and you are busy doing "normal" things. I look forward to learning more about your family!
Hi!
Just read your comment on my blog, and want to say first of all, your son is absolutely precious! and second of all, we absolutely looooved stanford (it was the only option for us because our hospital in los angeles denied moriah further surgery due to her complexity). they have two amazing surgeons, dr hanley and dr reddy, who people come all over the country/world to see. if you look at our blog under the label, lpch, you will see for yourself the loving, family-centered environment that their CVICU provides for you and your child. plus, the hospital is in a really nice location, and has an amazing ronald mcdonald house minutes away.
please dont hesitate to contact me if you have anymore questions.
my thoughts and prayers are with your family as you make this decision.
sincerely,
victoria
hey hey!! :) It's me
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