Monday, February 14, 2011

HAPPY VALENTINES DAY!!

HAPPY VALENTINE'S DAY!!!

With Love From,
Emma, Burke and Baby #3!
Baby #3 is due to arrive sometime in mid August (which means I am 14 plus weeks along right now.) The baby is healthy and when the doctor checked the heart- all looks healthy and normal and good!! We told the kiddos about the baby about a week ago and they have been so excited since!
There- our secret is out! Hope you have a HAPPY DAY!

Thursday, October 14, 2010

Emma's Ballet Photoshoot

Well, Emma is nearly fully recovered from her tonsillectomy she had 2 weeks ago. It took until day 11 post op for her to be somewhat her normal active fun self again. Hallelujah! Up until then it was dreadful!!

On a more happier note though, since she has her energy back she was able to go to ballet again this week!! She missed last week's class due to the already mentioned horrible surgery. Here are a few pictures of her in her ballet giddy-up! We recently put her into a small ballet class with one of her other cousins. It was very affordable and we felt she was more than ready to do something on her own like ballet!! She LOVES it! I made these leg warmers (which I make to sell as well) for her and wanted to get some pictures of her in them! These turned out pretty cute- (by the way LIZ when you read this- please be proud that I have learned just a tad bit about photo shop and know that I doctored these pictures up a little. I know they aren't profession-al, but I did it none the less. What do you think- good? Bad? I like them so that's all that matters right? Just kidding. )

Hope you enjoy these of our sweet little girl!!
I give all the credit to Emma for choosing the above pose! Totally an Emma pose for sure!!
I love this little girl's legs. They are so cute!!
She thought the one above was super fun to do as well!! Can you notice she has lost weight from her surgery. I wish I could have known exactly how much, but it was for sure noticeable! I want my tonsils out! Come on!
I made her these leggings thinking they would be great to wear for dance during the winter months. I guess her teacher didn't approve. Emma handed them to me after dance telling me that her teacher told her to take them off at the beginning of class. Whoops! Oh, well that was a good thought. I hope her primary teachers won't make her take them off at church- because that's the only other place she wears them. I guess we will see on Sunday right? Funny.

September and part of October

I am finally documenting and posting some pictures as of late. Here are some fun one of the kiddos in action. September brought us a new school year- Emma's second year at preschool! She missed the cut off date to start kindergarten this year- which I was more than fine with. I don't want to send my child off quite yet if at all. I might do the whole home school thing!! Schools these days really bother me and it is very scary what is going on in school! That is another topic for another day though!

September also brought new ballet class, which you can see other pictures in a different post.
September brought Burke a new found discovery for a lot of fun things! He is all over the place and has a mind of his own and is very creative and VERY playful!! We love it! He is our little tease in our family for sure. Big sis doesn't like it so much, but he gets a good laugh out of his little pesterings (is that even a word)! Hope you enjoy the random pictures!

Oh, the end of September also brought "Cub-ub" (as Emma used to call him when she couldn't say his name before his mission) - Tyler's nephew Caleb home from Guatemala where he has been serving a mission for two years for our church! It was so fun to be at the airport with like 50 other people all anxious for his arrival! Fun!








This picture is the only one I have of Emma after her tonsillectomy from my camera. I took a few on my phone at the hospital. What a bad mom I am. I have taken so many pictures of Burke at the hospital over the years- and I really failed on this one. But, I felt bad even thinking about taking a picture of her when she was SOOO miserable! She actually looks pretty good in this picture- she was looking really bad for a few days. Her eyes sunk into her head and she got skinny and pale. It was so sad. So, I guess I am glad to see that the only picture I did get was of when she didn't look like she was on her death bed. There, I feel better already. Notice the PINK ice cream- must have for a girl who got her tonsils out!! She is also under a fort Grandma made for Burke when Emma was in surgery! He loved it. Then E took it over.
This one is so funny. He loves babies. He loves his boat that Tyler made him for his Peter Pan cake. Put them together and you get a fun boat ride! He was so proud of this! I love it.


And if you get to the end of this post and are still awake, then you will know that this is not Grandma's house, this is our house and yes we have moved back into it!! Yippe!! We are so excited and the kids love playing with all their old toys again and getting to be in our house again with our little family. This was just taken yesterday. They love to pack everything in baskets, bags, boxes or containers and lug it around the house. Pack rats for sure (Jenny). And speaking of Jenny- thank you for that cute table to liven up our entry way. I will be sad when you want it back someday. And let me know if you would rather us not use it anymore now that we are moved back in. Thanks again I love our fun entry!!

Sunday, October 3, 2010

Surgery House, Sick House

It's about time I posted about our family and what we have been up to! There has been so much going on that I don't know where to start! Let's see, Burke had yet another surgery about three weeks ago. Yeah, can you believe it? He had sinus surgery to relieve his chronic sinusitis that he has had since February, and he got his tonsils and adenoids out!
His tonsils were so infected that they could have been the reason why he has been sick for so long, combined with his sinuses being so inflamed that there was no way for the infection in his sinuses to drain. This poor kid.

Recovery went okay. Some days were better than others. The first few days went really well, but then the scabs from the tonsils fell off and he had a few really miserable days with a big sore throat. About day 15 post op or so (last Tuesday) he spiked a temperature after I put him to bed. I measured the temp at 102.8! I don't think he has ever had that high of a temperature before! It came on so quickly and made his little heart race so fast. We were worried especially about his heart so we decided to take him into the ER.

When I walked into the ER I said frankly to the lady at the admitting desk. "This is Burke Johnson. He has a high fever and he has heart disease." She calmly and quickly asked his date of birth and had me sign something. Then again quickly and calmly she picked up a phone to contact the nurses in the back and said, "we have a 3 year old boy who has a high fever and his mom says he has heart disease." No more than 30 seconds later a lady came up to get me and we were back in the back getting check out. It was amazing. I had the ticket to get back into the ER quickly like never before. I could not believe their reaction. Professional, calm, and very quick. It was awesome. St. Luke's I commend you for how well you dealt with us in the ER that night. Thank you for caring for my child like I would want him to be dealt with.

So, we got admitted that night because after they ran some tests and took an x-ray. His white blood cell count was super high and they were concerned about what that meant. They wanted to keep him for 48 hrs to see if the cultures would grow anything or not. His fever never came back but they wanted to still keep him to watch him. By the middle of day two (not quite 48 hr yet though) Burke, in my eyes, was more than fine to be discharged. It took the rest of that afternoon to get all the doctors to agree to let him go. So, after 2 nights and two days we were released from the hospital. The next afternoon he was to go into the pediatrician to get the test results back. They came back negative! He must have caught some sort of virus that caused a random temperature. He is a little congested but is back to normal for the most part. He is his active crazy self again!!


Now onto Emma
. She got her tonsils checked by the ENT due to her getting sick frequently enough. I thought too, since tonsils were infected in Burke, that probably they were the culprit in Emma's case. She enough her tonsils were infected and large as were her adenoids! Super fun.

She was due to have her tonsils/adenoids out on Oct. 1st. Burke was discharged from the hospital on Sept. 30 (Thursday) and Emma was to be at the Surgical center at 9 am on Friday morning. We just wanted to do our best to keep the ENT, the hospital and the pharmacy in business! It is our pleasure! You can thank us later.

Her surgery went very well and was quicker than expected. Her adenoids were huge and the tonsils were huge and very infected. Her tonsils were bigger than Burke's were. I got to see them- pretty gross. I got a picture on my phone but I don't know how to get them off my phone and onto the computer. So, sorry no pictures. We stayed in the post op recovery room for about an hour and then were released. Weird. No PICU admission like Burke. No oxygen required. No over night stay to make sure all is stable. This was totally different than Burke's surgeries. How nice it is to have a child who is healthy and does not require all the special medical needs. I am so grateful for the tender mercies of the Lord.

Day one and two post op went great. Today though, day three post op, is a different story. She is hurting more today and won't take her pain meds. as well as the past few days. She is also not drinking as well. She is sleeping more today and resting more as well. Hopefully we can just get through this quickly. She is a trooper and reacted better the first few days post op better than we expected. Today though is more how we thought she would act- totally uncooperative! That's okay though. Things will get better. I feel so bad for her. I bet she is in so much pain. Having just been through this with Burke not long ago, her recovery is so different than his.

So, there you go. And update. Oh, I am sick again too. Sore throat and congestion. It is crazy how I usually get sick in a way that helps me be more empathetic to what the children are going through at the same exact time. Being a mama of two children who have both had surgery in the past two in a half weeks, and who have both been sick recently also, means that this mama is run down, exhausted and is running on little sleep. Happy days! But, we are alive and Burke is not in the hospital so we are grateful for our health, and to the Lord for watching over us through our tough time. He really has been there for us.

Friday, September 24, 2010

Stitches

One of the many reasons I have been M.I.A. from the blogging world lately is that I have started my own business called Stitches LLC!
Stitches is my sewing business where I sew and create a Bunch of different fun items for babies, children, teens and their mama's too! Go check it out at my new blog called of course... stitchesllc.blogspot.com and my ETSY site called Stitchesllc. I am really excited to begin this new and crazy journey!

Here is a LIST of the items I can sew and create, but is not limited to these:

*Holiday specialized pillowcases
*aprons (for kids, teens, and mamas)
*crayon rolls
*diaper/wipe clutches
*taggie blankets (Lovey's)
*soft toys for infants
*'bowtique' bows
*fabric hair pieces
*bibs
*burp rags
*washcloths
*paci clips
*car seat covers
*baby legs
*magnets
*blankets
*bow ties

Here is a preview of my first item I put up on my New Etsy Shop. Go check it out to order that one, or send me an email if you already have fabric in mind and I can custom order anything you wish! Thanks again! Hope you all have a Spooky Halloween too!


***Tell your friends! And stay tuned for some up coming Boutiques I will put my items in!

***I do custom orders as well! Just leave a comment or email me at lilcamper8@gmail.com!

Friday, August 27, 2010

8/28... or BUST!


I just got this picture emailed to me today while my brother and his 3 oldest kids were on their way by car to Washington DC for the 8/28 Restoring Honor Event! We wanted to go so bad to witness this historic event in person! I guess we will just listen to it tomorrow. Here are the details on glennbeck.com.

***Don't know what 8/28 is?***Well check it out here. You aint gonna want to miss this one. I'll be watching will you?

Monday, August 23, 2010

Peter Pan is "Free"

...also pronounced "Three"! On Saturday we celebrated Burke's 3rd birthday! I can't believe that we are celebrating his 3rd birthday!! It seems with all he has gone through he should be like 50 yrs old! We are so grateful for the Lord for sparing his life so many times throughout his life. The Lord is so merciful. He came here to earth to receive a body and to teach me and my family and those around him what this life is all about. He has taught us so much and still teaches us everyday. I am so blessed to have him come to our family. I am so grateful that he and Emma not only look so much alike but they act alike and they LOVE being siblings. I love it how she calls him "brother". I love it how he calls her "sister".

I love it how much he is enjoying his life with out oxygen and a feeding tube. I am grateful for the experience we had while he was on oxygen for he managed it so well and just went with the flow of having to be hooked up to a long cord for most of his life up until last December. I am grateful for that experience because now I appreciate Burke so much more now and appreciate not having to deal with the burden of the oxygen. I am grateful for how much I have learned through the experiences and trials we have gone through with Burke being born with Heart Disease.
I am grateful for all the doctors for loving and caring for Burke like he was their own. I am grateful for his surgeons and for how close to the Spirit they are while in surgery. I am ultimately grateful for the Lord's mercy in our lives.

Here are some of the pictures from Burke's fun day. He was happy the second he woke up! I just loved it! This birthday he actually knew what was going on and that made the day so much fun. It was his first birthday with out oxygen and with his heart fixed so we just played and had a great day. He even gave mommy a great present by taking a nap! The family in town came over to give him presents (which you guys didn't have to do) and to celebrate his life with us on that glorious day!! I just thank the Lord everyday for him and that his heart was able to get fixed.
Okay, I wasn't able to put captions on any of these pictures- it's acting funny or maybe it's just me. But you get the idea of how his day was. My parents wanted to get a bike for him and so I checked around for a long time on craigslist and at stores for good deals, we finally found one by calling Sam and Kathy and they had Graham's old bike that was in great condition that we got from them. Burke did great riding it the first time! Tyler's present to Burke was a wooden rubber band gun that Ty and Emma made together. It was a hit! He LOVED IT! Ty did a great job on it. You can tell in the picture where he has the purple birthday cape on looking at his cake that he is shooting Captain Hook (at point blank range) on the ship (that Tyler also made out of wood) on his cake. It was awesome! I think this birthday was the best ever for him!! It is so sad he is growing up! Enjoy the pictures. Thanks everyone who came to celebrate his life with us!! We love you all!
This last picture is so stinkin cute- he attached to this red heart balloon early in the morning and would NOT let it go! He was in the pool with it! I just love him.
Burke,

We love you so much little buddy! And I am grateful for you and your determination to keep going everyday even when you think you can't possibly go through one more surgery or procedure, or one more illness. You will get through this, I know that for a fact. Heavenly Father is with you everyday, every minute and every second of your life- never forget that. Never. You have been a fighter ever since you were born and you have NEVER given up and I commend you for that. You are truly and inspiration to me and everyone who hears of your story. You have been through 4 open heart surgeries (not counting the two times they opened you up with in a 24 hour period), 5 heart catheters (also surgeries), 1 tongue clipping surgery combined with ear tube surgery, and 1 last tongue clipping surgery just last month. You have been through more than most people have in their lives and you have stayed happy, and kept on eating and living despite all that.

I want you to know that your mama loves you, your daddy loves you, and your big sister Emma is the best big sister ever for you. I know for a fact with all my heart that she was sent here and supposed to be your big sister. She has been amazing help to me over the past few years and she is amazing to you and helps comfort you when you are sad or sick. She is the best and I want you to never forget that. She loves you so much. Your grandma's and grandpa's love you and all your 50 plus cousins on both sides love you as well.
Never keep going buddy. You amaze me and I can't wait to watch you grow up (slowly of course) and experience this wonderful life our Father in Heaven has created for us to experience. I love you with all my heart, "Lion Heart". Thank you for coming into this world "open- hearted".

Love always,
Mama